Scottish Government pressed on new treatment to tackle Essential Tremor

The Scottish Government is to be asked why there is a ‘blockage’ in bringing an innovative treatment for conditions such as Essential Tremor, MS and Parkinson’s to Scotland.

The Scottish Parliament’s public petitions committee heard today how high powered, focused ultrasound could be used on the brain to treat such conditions and is already being used in England.

However, in 2018, the National Specialist Services Committee was unable to endorse an application for funding which would allow a national designated service. It said more research was needed.

The public petitions committee agreed that the treatment had benefits and is now going back to the Government to ask why a decision has stalled, what is needed to achieve the introduction of the treatment and what the timescales are.

Highland and Islands Labour MSP,  Rhoda Grant, spoke at the committee, supporting Inverness resident, Mary Ramsay, who is campaigning to have the technology based in Dundee, and who has Essential Tremor. Her condition causes involuntary and rhythmic shaking and can affect almost any part of the body.

Mrs Grant read out part of Mrs Ramsay statement to MSPs which outlined why she was passionate about the campaign.

Mrs Grant said that Mary had told her: “My tremors, and the lack of understanding surrounding them, has impacted my entire life. Those of us with essential tremor deserve better, and there is a better option. If there is a will and determination to fight essential tremor, and to understand its causes, it can be overcome for the generations that will come after me. It is for those determining the outcome of this consultation to decide whether their will, and their determination, is sufficient for Scottish doctors and Scots with essential tremor to have the best opportunity to fight this fight. For me, and my part, if focussed ultrasound helps someone avoid what I went through, I will fight to my last breath to get it.”

After the meeting Mrs Ramsay, who lives in Dalneigh, said she was in tears when she heard the MSP read out that part of her statement to the committee.

“When she got to the last bit, the tears started rolling,” said Mrs Ramsay, who has received deep brain stimulation, a process which places electrodes in the brain, to help her condition.

“This is another step forward and I am hoping that we get the required response from the Government to get this technology in Scotland.”

Mrs Grant explained to the committee that Mrs Ramsay would not benefit from the new treatment but was passionate that others could.

“All the scientific work and case work surrounding this looks really positive and yes it is a new treatment and will take time to get embedded but it will be a game change for those with Essential Tremor, brain cancers as well as Parkinson’s,” said Mrs Grant.

  • Mary currently is Chair of the Scottish Tremor Society and supports the provision of magnetic resonance-guided focused ultrasound (MRgFUS) technology. She is supporting a £2.3million fundraising campaign run by the University of Dundee for the technology which, is nearing its target.

The technology uses MRI imaging to guide high powered, focused ultrasound to a very small point. At that point, molecules are vibrated extremely quickly, which creates intense local heat which destroys the tissue. The technology allows clinicians to target a very specific focal point – with very little heating produced in front of and behind that point, so only the targeted tissue is affected.

England is streets ahead with this equipment based at Imperial Healthcare NHS Trust, London. The team at Imperial supports the introduction of this novel technology to Scotland and the experts who use focused ultra sound at Imperial have informed the Ninewells team in Dundee that they would be happy to visit in order to guide them through the first few procedures.

 

 

Possible hope on horizon for Caithness and Highlands and Islands mothers

Highlands and Islands Labour MSP, Rhoda Grant, has met representatives from the Scottish Ambulance Service (SAS) and Maritime and Coastguard Agency in Holyrood to discuss the emergency transfer of pregnant women from Caithness.

Mrs Grant said the meeting was constructive and did give some hope that there could be a new service established to fly a medical team to the area to deal with maternity emergencies.

A new initiative called Best Start, looking at overall maternity services, is also considering whether a different skills and resources could be given to the ScotSTAR service, run by SAS and used to fly in medical experts in emergencies to locations across Scotland.

At the moment, ScotSTAR does not have obstetric/midwifery staff and Mrs Grant has raised this with Health Secretary, Jeane Freeman, asking if this gap could be filled to aid remote and rural locations.

“This new development does give me some hope but we are not there yet,” said Mrs Grant.

“There is no timescale for this new venture to come before the Scottish Government as various groups are looking at issues around this.

“So, in the meantime, I will continue to push NHS Highland to look at a risk assessment for emergency transfers and obviously I still have concerns while any new system is being formulated.”

At the meeting, both the ambulance service and the coastguard agency reiterated their view that airlifting women in labour was risky and road ambulance was the best option.

In September 2019 Mrs Grant called on Ms Freeman to launch an urgent review into the availability and suitability of emergency air transport for pregnant women across the whole of the Highlands and Islands. Ms Freeman responded by suggesting Mrs Grant meet with SAS.

Mrs Grant’s plea came after her further investigation into the case of a Caithness mother who went into labour at 30 weeks with twins. The babies were born 50 miles apart in a dash by a road ambulance to Raigmore Hospital.

Mrs Grant asked NHS Highland, SAS and the Health Secretary further questions after receiving an edited version of a Significant Adverse Event Review into the incident. She previously asked First Minister Nicola Sturgeon to investigate.

She repeated her call for a full risk assessment to be carried out on such emergency transfers and that a suitable craft can be made available for airlifts.

Mrs Grant said then that after receiving the responses, for any woman in labour and needing emergency help going by road ambulance is really the only option and air transfer is almost a non-starter.

The mother of the twins, who wants to remain anonymous, is supporting Mrs Grant’s campaign for a review.

North broadband delayed yet again

Highlands and Islands Labour MSP, Rhoda Grant, who has campaigned for a decade for better broadband in the Highlands and Islands has said she is dismayed to hear that the procurement of the R100 contract for the north will be delayed again, causing untold frustration for constituents throughout the region.

The MSP was informed of this by way of a government inspired question from Paul Wheelhouse, the Minister for Energy, Connectivity and the Islands, who advised that BT plc has been selected as the preferred bidder for the contract covering the north area and the government had intended to finalise governance and sign this contract in coming weeks.  However, the award is now subject to a legal challenge from Gigaclear Ltd, which the Scottish Government is currently considering and seeking advice on.

Mrs Grant said “Yet again, we have delays with the Highlands and Islands getting access to improved broadband.  Contracts in other parts of Scotland are signed and sealed but the north remains in limbo.

“This is a far cry from the Scottish Government’s claims to have everyone in Scotland connected to superfast broadband by 2021.  At this rate, we could be lucky if contracts are signed by then, never mind the infrastructure improved.

The MSP continued “It is not good enough, the north deserves, and needs, better.”

ENDS

Details of the Government Inspired Question is below.

SCOTTISH PARLIAMENT

WRITTEN ANSWER

19 December 2019

Index Heading: Organisational Development and Operations

Stewart Stevenson (Banffshire and Buchan Coast) (Scottish National Party): To ask the Scottish Government whether it will provide an update on procurement contracts relating to its Reaching 100% programme.

S5W-26766

Paul Wheelhouse: Following my announcement on 10 October that BT plc was the sole bidder for lots 2 and 3, covering Central and South Scotland, I can confirm that these contracts were signed on Monday 16 December.

BT plc has also been selected as the preferred bidder for lot 1, covering the North area. We had intended to finalise governance and sign this contract in the coming weeks. However, I can confirm that this award is now subject to a legal challenge from Gigaclear Ltd, which the Scottish Government is currently considering and seeking advice on. This will include consideration of the potential impact on the North lot and I will update Parliament as soon as I have more information. This development does not impact the Central and South lots.

MSP tries again to have damaging Uist dental decision reversed

Highlands and Islands Labour MSP, Rhoda Grant, has said that the Scottish Health Council (SHC) and the Scottish Government’s Minister for Public Health, Joe Fitzpatrick, have ‘totally missed the point’ about calling in the Uist dental decision.

Mrs Grant said “I contacted both organisations on 12 November asking them to now call in the decision to centralise dental services in Uist.

“Had the IJB taken the decision the Scottish Health Council would not have had the power to call it in as there is a loophole in legislation which prevents the SHC from calling in a decision made by an IJB.  This decision however was eventually taken by NHS Western Isles and the Comhairle so I have asked that the SHC now calls it in as they do have the power to scrutinise decisions made by health boards.

Mrs Grant continued “Taking local services out of communities is to be avoided at all cost and I will try, yet again, to have this damaging decision reversed.”

True picture of mental staff shortages shocking says MSP

Health chiefs have told an MSP that it is short of more than five full-time mental health nurses on a ward which was recently closed.

NHS Highland said the Strathy ward, in Migdale Hospital, Bonar Bridge, stopped taking “new admissions” in the middle of November, but the health authority has now said it has “no patients” on the ward at present.

Highlands and Islands Labour MSP, Rhoda Grant, wrote to NHS Highland’s Chief Executive, Iain Stewart, to ask more questions about the closure, following representations from a concerned constituent.

“The Chief Executive’s reply reveals a very shocking picture of mental health staff shortages which are especially felt in a rural area such as Sutherland,” said Mrs Grant.

“The small ward cares for ten older, adult elderly requiring assessment. Having that facility closer to home would have been a boon for the patients but also for their families and friends.

“It brings home the dire shortage of such staff and prompts the question of whether facilities such as the Strathy ward can ever reopen without a huge investment in both training and funding.”

Mrs Grant is writing to Health Secretary, Jeane Freeman, to ask what steps the Scottish Government is taking to ensure that mental health facilities and services are retained and expanded in the region.

The health authority’s reply highlights that the full establishment for the Strathy ward for qualified staff is 10.32 whole time equivalents (WTE) but there are 5.64 WTE registered mental health nurse vacancies.

The Chief Executive said that shortages meant that on the ward there would have been only the equivalent of just over two full-time staff available to work there, considering staff on sick leave and maternity leave.

NHS Highland said it was doing “all we can to recruit staff and in due course reopen the ward”.

“Every effort is being made to obtain nursing staff on a temporary or permanent basis with bank posts being fast tracked through recruitment and temporary contracts being offered to bank staff to ensure that the ward can safely open to admissions,” said the health authority.

“Clearly the risk of using bank and agency staff is that their attendance cannot be guaranteed therefore we cannot guarantee the safety of patients admitted to a ward based only on this staffing model. This is particularly relevant to patients requiring mental health care.”

It was also stressed that Migdale Hospital’s general Kylesku ward remains open and busy.

In November NHS Highland announced the ten-patient ward had both vacancies and sick leave affecting staffing numbers, and while every effort had been made to obtain registered mental health nursing cover including staff members working additional hours, bank and agency support there had been little success in getting the cover required.

It said then that older patients requiring inpatient mental health care would need to be admitted to New Craigs in Inverness.

Mrs Grant added: “I know that New Craigs has its own staffing problems and that community services have been cut.”

Migdale Hospital opened in 2011 at the cost of £8million.

 

 

Uist dentistry decision simply must be called in

Highlands and Islands Labour MSP, Rhoda Grant, says enough is enough and that the decision to close local dental surgeries in Uist in favour of a centralised hub simply must be stopped.

The MSP has been raising objections to the proposal for three years.  She was advised in December 2017 that the Western Isles Integration Joint Board (IJB) had stated that the decision would be communicated to the Scottish Health Council (SHC) which would determine whether the proposed arrangements would constitute ‘major service change’ and, if the SHC did consider the new model for dental services ‘major service change’, then the case would be referred to Scottish Ministers.  The MSP was later advised however that the SHC has no formal role in processes led by integration authorities.

Mrs Grant asked the First Minister during First Minister’s Questions on 7 December 2017 if she would impose a moratorium on the IJB decision until the regulation surrounding ‘major service change’ was checked.  The First Minister said no.

The MSP then sent a further letter to the then Health Secretary, Shona Robison, on 9 January 2018 asking specifically for clarification from her as to whether a decision made by an IJB can be called in for scrutiny whether it is deemed to be major service or not.  Shona Robison replied that the Scottish Government was satisfied that robust arrangements for public engagements are in place for integration authorities.

Rhoda Grant said “The First Minister, the previous Health Secretary, Shona Robison, and now the present Minister for Public Health, Joe FitzPatrick, have all hidden behind muddied legislation to avoid doing anything to right this wrong.  However, given that the final decision to close the local practices has been taken jointly by NHS Western Isles and the Comhairle, I am assuming that this decision can at last be called in for proper scrutiny.

Mrs Grant continued “Dental infections if left untreated can lead to systemic spread of infection and we simply cannot make access to dentists difficult.  We cannot ask people to travel a 60 mile round trip to see a dentist.

“I have also asked questions of the IJB on how the outreach service is going to be provided and who will receive this service, if consideration has been given to re-visiting the participatory budgeting process which implemented the current bus services in 2017, are travel expenses going to be paid for patients who have to travel to Benbecula and is the proposal going to be island proofed?  The response I got was that these questions will be addressed as part of the delivery plan which is in development and they would revert to me at that point.” said Mrs Grant.

“That says to me that this proposal is totally flawed with no answers to these very pertinent questions which people the length and breadth of Uist are asking.  Enough is enough – this decision simply has to be called in and I have asked the Scottish Health Council and the Scottish Government to do this.”

MSP Rhoda Grant raises job losses at Machrihanish, Campbeltown 

The job losses at CS Wind at Machrihanish, Campbeltown, were raised by Highlands and Islands Labour MSP, Rhoda Grant, at First Minister’s Questions today.

Mrs Grant said: “The First Minister will be aware of the announcement by CS Wind that they are reducing their workforce in Campbeltown by three quarters.

“This is a devastating blow for the workforce and also for the whole country because this is the only manufacturer of wind turbines in Scotland.

“Can I ask the First Minister what steps she has taken to protect these jobs and assist the workforce in this difficult time?”

Nicola Sturgeon thanked Mrs Grant for raising the issue, admitting that it will be an “exceptionally difficult time for workers who have been issued with redundancy notices.

The First Minister said the Energy Minister had spoken with the company’s management a couple of days ago to discuss the reasons behind the move. Ms Sturgoen said that the Scottish Government believed it was “a gap in the order book” not about its future prospects or long term sustainability. She added that the Government and Highlands and Islands Enterprise were committed to doing all they can to mitigate the impact of the redundancy notices and dialogue continued with the company to support it to ensure its long their sustainability and success.

Afterwards Mrs Grant said: “This is a huge blow for this area as it is understood that 73 out of 94 jobs are to go.

“The amount of manufacturing work awarded to Scottish renewable manufacturers remains too low for a country which has a huge number of windfarms, especially in the Highlands and Islands.

“Promises of employment in the low-carbon and renewable energy (LCRE) economy has not translated into the jobs boom promised and there’s been a failure of an industrial policy to ensure that workers, businesses and Government in Scotland benefit from Scotland’s natural resources.”

 

Disappointment at weak Government response on Uist dentistry

Highlands and Islands Labour MSP, Rhoda Grant, has expressed extreme disappointment that the proposal to centralise Uist dental services in Benbecula is not subject to higher level scrutiny.

Mrs Grant has received a response from the Scottish Government’s Minister for Public Health, Joe Fitzpatrick, advising that he is seeking assurances from NHS Western Isles on particular aspects of the new service, including the outreach component.

The Minister has advised that he is also keen to ensure that concerns from the local community and other health care professionals are addressed in full, and that the IJB has a satisfactory communications and engagement plan in place with the Minister advising that he has asked officials to convey these points to the IJB and intends to ensure they are acted upon.

Rhoda Grant said “The communities affected by this proposal want the decision called in by Scottish Ministers.  What they have got instead is a weak plea for assurances that all will be well with the new proposal.

“The Minister says that he is keen to ensure that concerns from the local community and other health care professionals are addressed in full.  The views of service users must be heard and the views of health care professionals simply must be adhered to.  They know what service provision is adequate, and what is not.  Outreach services cannot meet all the needs of patients at a distance.

Mrs Grant concluded “I had hoped for a more robust response from the Scottish Government given the strength of local opposition and I will again ask for a full enquiry to be carried out and for an islands impact assessment to be carried out before this deeply worrying proposal is allowed to go any further.”

Transport Scotland says roundabouts will be considered for Tain junctions

A range of improvements, including roundabouts, are to be considered for improving the safety at two Tain junctions, an MSP has discovered.

Highlands and Islands Labour MSP, Rhoda Grant, wrote to Transport Scotland after the community backed putting in roundabouts for the Tain A9 Asda and Lidl junctions.

Mrs Grant had already been told about planned improvements including reducing the speed limit to 50mph on a 3km stretch of the A9 – 260 metres south of the A9 junction with the B9174 Knockbreak Road and continuing until 180 metres north of the A9 junction with the B9174 Morangie Road. This is to be put out to consultation.

Now Transport Scotland’s Chief Executive, Roy Brannen, says it is looking for a consultant to review long-term engineering options for the stretch and this will include a range of junction improvement, including roundabouts.

“This is good news, but I have to raise a note of caution as Transport Scotland has told me that any larger scale projects will be subject to funding and will compete with other priorities on the trunk road network,” said Mrs Grant.

“I do hope the Scottish Government will see this as a priority for funding given the number of accidents and near misses on this stretch.

“The community is anxious to avoid a serious accident or a fatality at these junctions, so I hope planning these longer-term improvements will not take long.

“I hope that Transport Scotland will also look at other alternatives in the long term that provide safety as well as ensuring the journey north is not permanently lengthened.”

Last year Mrs Grant was contacted by constituents who told her that ‘nearly every week’ an incident happens’ around the Asda and Lidl junctions.

She has highlighted recent publicity about 11 accidents at the Tain Asda junction, labelled the worst A9 hotspot.